Patient Destiny: One Patient, One Record - Day Two

Day Two - Background

Download background on Day Two - Blood Work Results

Buy Hard Copy of Final Report for Day One

Final Report from DAY ONE

download the Final Report from Day One

One Patient, One Record Symposium

First Annual Symposium
Cost: $200 including light breakfast and full lunch
Attendees: Healthcare personnel (including providers, administrators, researchers, academics, Ministries of Health) and Patients
Location: The Faculty Club, University of Toronto 41 Willcocks Street, Toronto, Ontario, CANADA
Date/Time: Tuesday, April 21, 2009 8:30 am to 4:00 pm

Buy Kevin's Book Now

Proceeds go to Patient Advocacy support

Kevin's Book - "A Prescription for Patience"

This is a book that is targeted at all patients. Throughout the book, I present how changing technology has affected our society in a number of industries (education, banking and sports/entertainment) culminating in a discussion on healthcare. I discuss my role in each of these industries as a change agent and illustrate how the industries have matured as a result of rising consumerism and greater expectations relating to information access and delivery. The overall objective is, through the art of storytelling, to illustrate how each of these industries has dealt with change and changing technology and the similarities (and differences) when compared to healthcare. Hopefully, these illustrations will provide insight into moving the healthcare industry forward as well as an incentive to all consumers, the healthy and the patients, to become more involved in their own care and health management and to expect more from health providers.

White Knight Publications

Patient Destiny ... defined

There is an inevitable evolution, some might even say revolution, that is taking place in healthcare. This inevitability, termed Patient Destiny, pertains to the fact that patients are beginning to demand better healthcare information. Patients must be able to access their own personal health information in order, ultimately, to partner with providers in the management of their health and wellness care. Just as customers accessing their information have reduced banking industry costs, it is a general assumption that the same will hold true in healthcare. As more patients bypass the "hands-on" personal method and obtain information for themselves, it is estimated that great savings will be gained, and consequently, a tremendous amount of strain will be removed from the system. Soon patients will start demanding better information about the system, about who does which services and about how well they perform these services. Answers to these questions will allow consumers to make informed decisions surrounding their care. Patients want access to their own patient information - and they want to be able to understand what it is that they are reading. In addition, they want to know more about their illness or disease and they want information on treatment options and success rates. Often, they would like to get in touch with other patients to exchange experience and to get advice. After all, it is only when they interact with other patients that they get real information about what they are going, or will go, through. It is our belief that in the healthcare system of the future, we will see physicians (and other professionals) act as advisors to patients rather than the old model where patients are told what to do. Gone will be the day where patients will feel that they are not free to question "facts" or to seek "options." In essence, a health industry-wide strategy of patient awareness and education is now required. All consumers of healthcare - the healthy and the patients - need to be presented with a forum for a comprehensive discussion on healthcare, one that deals with the trends of rising consumerism and greater expectations relating to information access and delivery. We must promote an "effective and coordinated consumerism" perspective within healthcare. Hopefully, this will provide an incentive to all consumers to become more involved in their own care and health management and to demand more from health providers.

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August 28, 2009

One Patient, One Record - Day Two

Patient Destiny is now following up on the VERY successful first event - Day One. This was a full day symposium held at the University of Toronto April 21, 2009. The Final Report is now available of this site for download. A hard copy can also be obtained for a modest fee (including shipping costs).

Our next event - Day Two - is a half day workshop scheduled for September 29, 2009. The agenda and background information is also available for download on this site.

In essence, our objective is to begin the process of gaining access to patient health information gradually over a period of steps. The first step is blood work results.

We believe that blood results are a very common diagnostic tool used for many illness and disease groups. Testing patient access with a limited portion of the electronic record will allow for much learning at very little expense and risk.

I will be posting more detail over the coming days. I look forward to all of your comments and a very "healthy" debate.

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Associate Professor, Faculty of Medicine, University of Toronto
Kevin received his Ph.D. from the Joint Doctoral Program in Montreal (Concordia University) where he specialized in Statistics and Information Systems Theory for Business. In 1996, Kevin joined the Department of Health Policy Management and Evaluation at the University of Toronto. He has two primary areas of research: (i) the creation of a National Patient Advocacy Program along with researching issues pertaining to the development and implementation of new technology in healthcare and, specifically, centralized electronic patient and/or health records (EPR); (ii) the creation and implementation of metrics for performance measurement of the IT investment within healthcare.

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