Step 10: Reach out to other like patients to complete the circle as this promotes awareness and mentorship
We must begin to invite others to support and participate in our cause. Why? Because this cause is about our healthcare system and how it affects all of us – the users (all patients and their families) and future users (all of us).
Today, there is no regular forum or an association in Canada (as in almost all countries around the globe) that speaks for all users of our healthcare system. This is even more strange when you consider that, in Canada, all of us are the ultimate payers as well. This is what Patient Destiny is all about.
Patients need an advocate, an organization, an infrastructure that can provide an environment where we can freely access their own health information, where we can network with other patients, where we can receive help and constructive feedback, and where we can have our collective voice heard with respect to health policy decisions that are being made.
We need to be more involved and informed!! We NEED access to our own health information electronically!
Access to our health records would greatly enhance our ability to manage our condtions. We believe that this is true for all patients.
Imagine the impact: With immediate access to their records and test results, patients would be able to improve their health status by getting feedback on their conditions in a more timely manner. If each patient (that is capable and willing to do so, of course) were to manage his or her own conditions in a more effective way, the cost of funding the healthcare system in your province would drop significantly… and there is evidence supporting this claim.
So, why can’t we get access to our information if it will make us healthier and will improve the cost of running the health system? The only reason we can think of is that we have not spoken up and demanded it – until now! We want access to our health information. All we want to do is help – we want to help.